4 stories tagged #Rare Disease

  1. Survey Reveals Severe Mental Health Crisis Among Europe’s Rare Disease Patients
    health

    Survey Reveals Severe Mental Health Crisis Among Europe’s Rare Disease Patients

    EURORDIS survey finds rare disease patients face depression and anxiety rates seven times higher than the general EU population, with significant barriers to psychological care access.

    4d ago 1 min read
  2. AI and Digital Twins Revolutionize Rare Disease Research
    health

    AI and Digital Twins Revolutionize Rare Disease Research

    AI-powered digital twins are transforming rare disease research, overcoming traditional trial limitations and accelerating the development of new treatments for patients.

    4mo ago 1 min read
  3. World First: Gene Editing Cures Rare Disease in Canadian Teen
    health

    World First: Gene Editing Cures Rare Disease in Canadian Teen

    A revolutionary gene-editing treatment has cured a rare genetic disease in a 19-year-old British Columbia man, marking a significant medical breakthrough.

    4mo ago 1 min read
  4. Living Fully: A Woman's Triumph Over Myasthenia Gravis
    health

    Living Fully: A Woman's Triumph Over Myasthenia Gravis

    Discover the inspiring journey of a woman diagnosed with Myasthenia Gravis at age six, who refuses to let a rare disease define her life.

    4mo ago 2 min read