Irfan Sulaiman, a 20-year-old aerospace engineering student, is living with severe haemophilia A, a rare blood condition affecting approximately 280 individuals in Singapore. This diagnosis means his blood lacks the necessary clotting factor, leading to prolonged bleeding from even minor cuts and injuries.
Sulaiman's childhood was marked by caution to prevent injuries. Diagnosed at age two, he underwent frequent hospital infusions. A significant turning point came at 15 when he learned to self-administer his treatment, gaining crucial independence and reducing bleeds. This empowerment allowed him to pursue safer sports like badminton and volleyball.
While a career as an aerospace engineer might be physically demanding, Sulaiman remains determined to work in the aviation industry, exploring roles like air traffic control. He also works part-time to manage his medical costs, supported by organizations like the Haemophilia Society of Singapore and government schemes.
On World Haemophilia Day, Sulaiman hopes for greater access to advanced treatments and encourages others with haemophilia not to let their condition define them. He emphasizes the importance of independence, community support, and empowering oneself to live life to the fullest.